Patient Information

This framework aims to promote an awareness of what palliative care is and encourage the seamless integration of cardiac palliative care core components as appropriate following a diagnosis of Heart Failure. The resources offer practical guidance for patients, carers and professionals and include:

• A Cardiac Supportive Palliative Care Guidance professional resource

• A What Matters to You? meaningful conversation plan (interactive PDF or printable)

• A Supportive Palliative Care in Heart Failure patient and carer information booklet

Following the initial launch of the resource framework in 2022, a UK and Republic of Ireland What Matters Meaningful Conversation Plan (WMMCP) evaluation was conducted involving 23 Heart Failure Specialist Nurse Service sites. The findings from the evaluation have informed the changes now implemented into Version 2 of both the WMMCP and the Cardiac Supportive Palliative Care Guidance (CS-PCG) resources; these are now available to download. We would like to extend our sincere appreciation to the patient and carer experts, and all the professional stakeholders and associated affiliations who gave their time to contribute to the overall design, development and evaluation of the resources. Additional information about the Cardiac Palliative Care Resource Framework development and evaluation process has been published in a series of papers that are pending publication from September onwards in the British Journal of Cardiac Nursing 2024.

Download Health Care Professional Resources

Support

There are several associations that offer patients support and advice. Please click on their logos below for more information.